TY - JOUR
AU - A. Adeyokunnu
AU - H. Avant
AU - S. Hardy
AU - C. Rowley
AU - C. Cole-Cavins
AU - T. Fasipe
AU - L. Kittles
AU - V. H. Coleman-Cowger
A1 - 
AB - Despite advances in treatment, the mental health challenges of individuals living with Sickle Cell Disease (SCD) remain critically overlooked. Depression, anxiety, and post-traumatic stress disorder disproportionately affect this population, yet mental health support is often inadequate or absent. This paper presents patient-driven insights into the psychological toll of SCD, emphasizing the urgent need for integrated care approaches that address both physical and mental health. By exploring barriers to mental health access, the impact of medical trauma, and strategies for resilience, we aim to shift the conversation toward a more holistic, patient-centered model of SCD care.
AD - Sikcell, Philadelphia, PA 19405, USA.; Artfully Avant, LLC, 3217 Concord Dr, Mesquite, TX 75150, USA.; Center for Cancer and Blood Disorders, Children's National Hospital, 111 Michigan Ave., NW, Washington, DC 20010, USA.; Cayenne Wellness Center, 205 S. Flower St., Burbank, CA 91502, USA.; Cleverly Changing, LLC 14280 Baltimore Ave #1038, Laurel, MD 20707, USA.; Department of Pediatrics, Section of Hematology-Oncology, Baylor College of Medicine, Texas Medical Center, 6701 Fannin St., Houston, TX 77030, USA.; PR Strategists, LLC, Columbia, MD 20145, USA.; The Emmes Company, LLC, 401 N. Washington Street, Suite 700, Rockville, MD 20850, USA. Electronic address: vcolemancowge@emmes.com.
AN - 41456972
BT - J Natl Med Assoc
C5 - Healthcare Disparities
DA - Dec 27
DO - 10.1016/j.jnma.2025.12.002
DP - NLM
ET - 20251227
JF - J Natl Med Assoc
LA - eng
N2 - Despite advances in treatment, the mental health challenges of individuals living with Sickle Cell Disease (SCD) remain critically overlooked. Depression, anxiety, and post-traumatic stress disorder disproportionately affect this population, yet mental health support is often inadequate or absent. This paper presents patient-driven insights into the psychological toll of SCD, emphasizing the urgent need for integrated care approaches that address both physical and mental health. By exploring barriers to mental health access, the impact of medical trauma, and strategies for resilience, we aim to shift the conversation toward a more holistic, patient-centered model of SCD care.
PY - 2025
SN - 0027-9684 (Print); 0027-9684
ST - Mental health challenges associated with sickle cell disease and strategies to address them: Reflections from a community input panel
T1 - Mental health challenges associated with sickle cell disease and strategies to address them: Reflections from a community input panel
T2 - J Natl Med Assoc
TI - Mental health challenges associated with sickle cell disease and strategies to address them: Reflections from a community input panel
U1 - Healthcare Disparities
U3 - 10.1016/j.jnma.2025.12.002
VO - 0027-9684 (Print); 0027-9684
Y1 - 2025
ER -