TY - JOUR
AU - C. Steinway
AU - S. Shilly
AU - T. Belton
AU - K. Smith-Whitley
AU - S. Jan
AU - L. A. Schwartz
AU - L. E. Crosby
A1 - 
AB - OBJECTIVE: This paper outlines the design and implementation of iManage SCD, a self-management mobile health application for adolescents and young adults (AYA) with sickle cell disease (SCD) during transition from pediatric to adult health care. METHODS: The Integrate, Design, Assess, Share (IDEAS) framework, emphasizing user insights, iterative design, rigorous assessment, and knowledge sharing, guided the development process. The design team consisted of researchers, psychologists, physicians, social workers, AYA with SCD, and parents of AYA with SCD (n = 16) across three states. Qualitative focus groups and interviews were conducted and analyzed using thematic analysis across the integrate and design phases. Point of use feedback from AYA with SCD was used to assess feasibility and acceptability. RESULTS: The development process was centered around tenants of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition. Development integrated multidisciplinary perspectives, fostering a person-centered approach. The iterative design process involved collaboration with a digital health firm, Agency39A. Health equity and implementation considerations were addressed at individual, community, and healthcare system levels. Themes that emerged from focus groups with AYA, clinicians, and researchers in the integrate and design phases of development included recommendations for content and user experience features. CONCLUSIONS: iManage SCD emerges as a comprehensive, user-friendly mobile health application, incorporating theoretical principles and direct user input. The development process demonstrated feasibility and acceptability, and the paper discusses dissemination strategies for the Community Health Workers and Mobile Health Programs to Help Young Adults with SCD Transition to Using Adult Healthcare Services (COMETS) study.
AD - Northwell Health, New Hyde Park, NY, USA.; Division of General Pediatrics, Cohen Children's Medical Center, New Hyde Park, NY, USA.; Department of Pediatrics, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, USA.; Columbia University School of Nursing, New York, NY, USA.; PolicyLab, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Pfizer, New York, New York, USA.; Division of Hematology, Children's Hospital of Philadelphia, Philadelphia, PA, USA.; Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital, Cincinnati, OH, USA.; Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
AN - 39712602
BT - Health Care Transit
C5 - Healthcare Disparities; HIT & Telehealth
DO - 10.1016/j.hctj.2024.100074
DP - NLM
ET - 20241028
JF - Health Care Transit
LA - eng
N2 - OBJECTIVE: This paper outlines the design and implementation of iManage SCD, a self-management mobile health application for adolescents and young adults (AYA) with sickle cell disease (SCD) during transition from pediatric to adult health care. METHODS: The Integrate, Design, Assess, Share (IDEAS) framework, emphasizing user insights, iterative design, rigorous assessment, and knowledge sharing, guided the development process. The design team consisted of researchers, psychologists, physicians, social workers, AYA with SCD, and parents of AYA with SCD (n = 16) across three states. Qualitative focus groups and interviews were conducted and analyzed using thematic analysis across the integrate and design phases. Point of use feedback from AYA with SCD was used to assess feasibility and acceptability. RESULTS: The development process was centered around tenants of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition. Development integrated multidisciplinary perspectives, fostering a person-centered approach. The iterative design process involved collaboration with a digital health firm, Agency39A. Health equity and implementation considerations were addressed at individual, community, and healthcare system levels. Themes that emerged from focus groups with AYA, clinicians, and researchers in the integrate and design phases of development included recommendations for content and user experience features. CONCLUSIONS: iManage SCD emerges as a comprehensive, user-friendly mobile health application, incorporating theoretical principles and direct user input. The development process demonstrated feasibility and acceptability, and the paper discusses dissemination strategies for the Community Health Workers and Mobile Health Programs to Help Young Adults with SCD Transition to Using Adult Healthcare Services (COMETS) study.
PY - 2024
SN - 2949-9232
SP - 100074
ST - Development of the iManage SCD mobile health application for transition
T1 - Development of the iManage SCD mobile health application for transition
T2 - Health Care Transit
TI - Development of the iManage SCD mobile health application for transition
U1 - Healthcare Disparities; HIT & Telehealth
U3 - 10.1016/j.hctj.2024.100074
VL - 2
VO - 2949-9232
Y1 - 2024
ER -