TY - JOUR
AU - N. El-Dassouki
AU - M. Taylor
AU - K. J. Pfisterer
AU - A. Saragadam
AU - M. Nakhla
AU - M. Greenberg
AU - A. Landry
AU - G. Mukerji
AU - E. Mok
AU - A. S. Brazeau
AU - J. C. Kichler
AU - J. A. Cafazzo
AU - R. Shulman
A1 - 
AB - OBJECTIVE: The time during which adolescents and young adults (AYAs) living with Type 1 Diabetes (T1D) transition from pediatric to adult care is associated with blood sugar levels outside of target ranges, care gaps, and an increased risk of acute diabetes complications. The aim of this study was to understand (1) the perspectives of AYAs and providers about the strengths, challenges, and opportunities of transition care and (2) the role of digital technologies in supporting the transition to adult care. Research Design and Methods. We conducted a qualitative descriptive study that involved 43 semistructured interviews in French or English with AYA living with T1D (aged 16-25; n = 22) and pediatric or adult diabetes health care providers (HCPs) (n = 21). RESULTS: We identified three themes. First, transition care is not standardized and varies widely, and there is a lack of awareness of transition guidelines. Second, virtual care can simultaneously hinder and help relationship-building between providers and AYA. Third, AYAs value a holistic approach to care; both HCPs and AYA highlighted the opportunity to better support overall mental wellbeing. CONCLUSIONS: The design of digital technologies to support T1D transition care should consider methods for standardizing holistic care delivery and integrating hybrid diabetes care visits to support access to transition care. These findings can inform future transition intervention development that leverages existing transition guidelines, targets holistic care model integration, and considers quantitative diabetes metrics in conjunction with broader life experiences of AYA when providing transition care.
AD - Centre for Digital Therapeutics University Health Network, 190 Elizabeth Street Toronto, M5G 2C4, Toronto, ON, Canada.; Department of Systems Design Engineering University of Waterloo, 200 University Avenue W, Waterloo N2L 3G1, ON, Canada.; School of Public Health Sciences University of Waterloo, 200 University Ave W, Waterloo N2L 3G1, ON, Canada.; Division of Endocrinology Montreal Children's Hospital McGill University Health Centre, 1001 Boulevard Decarie, Montreal, QC H4A 3J1, Canada.; Research Institute of the McGill University Health Centre, 2155 rue Guy, Montreal H3H 2R9, QC, Canada.; Diabetes Action Canada Toronto General Hospital, 200 Elizabeth Street, Toronto M5G 2C4, ON, Canada.; Markham Stouffville Hospital Oak Valley Health, 381 Church Street, Markham L3P 7P3, ON, Canada.; Women's College Hospital, 76 Grenville Street, Toronto M5S 1B2, ON, Canada.; Centre for Outcomes Research and Evaluation Research Institute of the McGill University Health Centre, 5252 de Maisonneuve Boulevard W., Montreal H4A 3S9, QC, Canada.; School of Human Nutrition McGill University, 21111 Lakeshore Road, Ste. Anne de Bellevue H9X 3V9, QC, Canada.; Department of Psychology University of Windsor, 401 Sunset Avenue, Windsor N9B 3P4, ON, Canada.; Institute of Health Policy Management and Evaluation Dalla Lana School of Public Health University of Toronto, 155 College Street, Toronto M5T 3M7, ON, Canada.; Institute of Biomedical Engineering University of Toronto, 164 College Street, Toronto, ON M5S 3E2, Canada.; Healthcare Human Factors University of Toronto, 190 Elizabeth Street Toronto, Toronto M5G 2C4, Canada.; SickKids Research Institute, 686 Bay Street, Toronto M5G 0A4, ON, Canada.; Institute for Clinical Evaluative Sciences, 2075 Bayview Avenue, Toronto M4N 3M5, ON, Canada.; Division of Endocrinology The Hospital for Sick Children, 555 University Avenue, Toronto M5G 1X8, ON, Canada.
AN - 40302956
BT - Pediatr Diabetes
C5 - Healthcare Disparities; HIT & Telehealth
DO - 10.1155/2024/3721768
DP - NLM
ET - 20240715
JF - Pediatr Diabetes
LA - eng
N2 - OBJECTIVE: The time during which adolescents and young adults (AYAs) living with Type 1 Diabetes (T1D) transition from pediatric to adult care is associated with blood sugar levels outside of target ranges, care gaps, and an increased risk of acute diabetes complications. The aim of this study was to understand (1) the perspectives of AYAs and providers about the strengths, challenges, and opportunities of transition care and (2) the role of digital technologies in supporting the transition to adult care. Research Design and Methods. We conducted a qualitative descriptive study that involved 43 semistructured interviews in French or English with AYA living with T1D (aged 16-25; n = 22) and pediatric or adult diabetes health care providers (HCPs) (n = 21). RESULTS: We identified three themes. First, transition care is not standardized and varies widely, and there is a lack of awareness of transition guidelines. Second, virtual care can simultaneously hinder and help relationship-building between providers and AYA. Third, AYAs value a holistic approach to care; both HCPs and AYA highlighted the opportunity to better support overall mental wellbeing. CONCLUSIONS: The design of digital technologies to support T1D transition care should consider methods for standardizing holistic care delivery and integrating hybrid diabetes care visits to support access to transition care. These findings can inform future transition intervention development that leverages existing transition guidelines, targets holistic care model integration, and considers quantitative diabetes metrics in conjunction with broader life experiences of AYA when providing transition care.
PY - 2024
SN - 1399-543X (Print); 1399-543x
SP - 3721768
ST - Supporting Adolescents and Young Adults through Digitally Mediated Type 1 Diabetes Transition Care: A Qualitative Descriptive Study
T1 - Supporting Adolescents and Young Adults through Digitally Mediated Type 1 Diabetes Transition Care: A Qualitative Descriptive Study
T2 - Pediatr Diabetes
TI - Supporting Adolescents and Young Adults through Digitally Mediated Type 1 Diabetes Transition Care: A Qualitative Descriptive Study
U1 - Healthcare Disparities; HIT & Telehealth
U3 - 10.1155/2024/3721768
VL - 2024
VO - 1399-543X (Print); 1399-543x
Y1 - 2024
ER -