TY - JOUR
AU - A. Toulany
AU - D. Khodyakov
AU - S. Mooney
AU - L. Stromquist
AU - K. Bailey
AU - C. E. Barber
AU - M. Batthish
AU - K. Cleverley
AU - G. Dimitropoulos
AU - J. W. Gorter
AU - D. Grahovac
AU - R. Grimes
AU - B. Guttman
AU - M. L. Hébert
AU - T. John
AU - L. Lo
AU - D. Luong
AU - L. MacGregor
AU - G. Mukerji
AU - J. Pidduck
AU - V. Senthilnathan
AU - R. Shulman
AU - P. Trbovich
AU - S. E. Munce
A1 - 
AB - BACKGROUND: The transition from pediatric to adult care poses a significant health system-level challenge impeding the delivery of quality health services for youth with chronic health conditions. In Canada and globally, the transition to adult care is regarded as a top priority in adolescent health in need of readily applicable, adaptable, and relevant national metrics to evaluate and benchmark transition success across disease populations and clinical care settings. Unfortunately, existing literature fails to account for the lack of engagement from youth and caregivers in developing indicators, and its applicability across chronic conditions, primary care involvement, and health equity considerations. OBJECTIVE: Our proposed study aims to establish a consensus-driven set of quality indicators for the transition to adult care that are universally applicable across physical, developmental, and mental health conditions, clinical care settings, and health jurisdictions. METHODS: Using an integrated knowledge translation (iKT) approach, a panel comprising youth, caregivers, interdisciplinary health care providers, and health system leaders will be established to collaborate with our research team to ensure that the study methodology, materials, and knowledge dissemination are suitable and reflect the perspectives of youth and their families. We will then conduct an iterative 3-round Online Modified Delphi (OMD) study (n=160) to (1) compare and contrast the perspectives of youth, caregivers, health care providers, and health system leaders on quality indicators for transition; and (2) prioritize a key set of quality indicators for transition applicable across disease populations that are the most important, useful, and feasible in the Canadian context. Using the RAND/UCLA Appropriateness Method (RAM) multistage analytic approach, data from each panel and stakeholder group will be examined separately and compared to establish a key set of indicators endorsed by both panels. RESULTS: The study is funded by the Canadian Institutes of Health Research and Physicians Services Incorporated. CONCLUSIONS: This study will produce quality indicators to evaluate and inform action equitably to improve transition from pediatric to adult care for youth and their families in Canada. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/60860.
AD - Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada.; Department of Adolescent Medicine, The Hospital for Sick Children, Toronto, ON, Canada.; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada.; RAND, Santa Monica, CA, United States.; Stollery Children's Hospital, Alberta Health Services, Edmonton, AB, Canada.; Alberta Strategy for Patient Oriented Research Support Unit, University of Calgary, Calgary, AB, Canada.; Children's Healthcare Canada, Ottawa, ON, Canada.; Department of Medicine, University of Calgary, Calgary, AB, Canada.; Department of Pediatrics, McMaster University, Hamilton, ON, Canada.; Centre for Addiction and Mental Health, Toronto, ON, Canada.; Lawrence Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada.; Department of Rehabilitation, Physical Therapy Science & Sports, Wilhelmina Children's Hospital, Utrecht, Netherlands.; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.; Children's Healthcare Canada, National Health Hub in Transition, Hamilton, ON, Canada.; Canadian Pediatric Society, Winnipeg, MB, Canada.; Provincial Council for Maternal and Child Health, Toronto, ON, Canada.; Faculty of Rehabilitation Medicine, Department of Occupational Therapy, University of Alberta, Edmonton, AB, Canada.; Division of Adolescent Medicine, The Hospital for Sick Children, Toronto, ON, Canada.; Centre for Quality Improvement and Patient Safety, University of Toronto, Toronto, ON, Canada.; Rehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada.; Martin Luther University College, Waterloo, ON, Canada.; Women's Institute of Health Systems Solutions and Virtual Care, Women's College Hospital, Toronto, ON, Canada.; IWK Health, Halifax, NS, Canada.; Division of Endocrinology, Department of Paediatrics, University of Toronto, Toronto, ON, Canada.; Patient Safety and Quality Improvement, North York General Hospital, Toronto, ON, Canada.; KITE, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada.; Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada.
AN - 38889353
BT - JMIR Res Protoc
C5 - HIT & Telehealth; Healthcare Disparities
DA - Sep 10
DO - 10.2196/60860
DP - NLM
ET - 20240910
JF - JMIR Res Protoc
LA - eng
N2 - BACKGROUND: The transition from pediatric to adult care poses a significant health system-level challenge impeding the delivery of quality health services for youth with chronic health conditions. In Canada and globally, the transition to adult care is regarded as a top priority in adolescent health in need of readily applicable, adaptable, and relevant national metrics to evaluate and benchmark transition success across disease populations and clinical care settings. Unfortunately, existing literature fails to account for the lack of engagement from youth and caregivers in developing indicators, and its applicability across chronic conditions, primary care involvement, and health equity considerations. OBJECTIVE: Our proposed study aims to establish a consensus-driven set of quality indicators for the transition to adult care that are universally applicable across physical, developmental, and mental health conditions, clinical care settings, and health jurisdictions. METHODS: Using an integrated knowledge translation (iKT) approach, a panel comprising youth, caregivers, interdisciplinary health care providers, and health system leaders will be established to collaborate with our research team to ensure that the study methodology, materials, and knowledge dissemination are suitable and reflect the perspectives of youth and their families. We will then conduct an iterative 3-round Online Modified Delphi (OMD) study (n=160) to (1) compare and contrast the perspectives of youth, caregivers, health care providers, and health system leaders on quality indicators for transition; and (2) prioritize a key set of quality indicators for transition applicable across disease populations that are the most important, useful, and feasible in the Canadian context. Using the RAND/UCLA Appropriateness Method (RAM) multistage analytic approach, data from each panel and stakeholder group will be examined separately and compared to establish a key set of indicators endorsed by both panels. RESULTS: The study is funded by the Canadian Institutes of Health Research and Physicians Services Incorporated. CONCLUSIONS: This study will produce quality indicators to evaluate and inform action equitably to improve transition from pediatric to adult care for youth and their families in Canada. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/60860.
PY - 2024
SN - 1929-0748
SP - e60860
ST - Quality Indicators for Transition from Pediatric to Adult Care for Youth With Chronic Conditions: Proposal for an Online Modified Delphi Study
T1 - Quality Indicators for Transition from Pediatric to Adult Care for Youth With Chronic Conditions: Proposal for an Online Modified Delphi Study
T2 - JMIR Res Protoc
TI - Quality Indicators for Transition from Pediatric to Adult Care for Youth With Chronic Conditions: Proposal for an Online Modified Delphi Study
U1 - HIT & Telehealth; Healthcare Disparities
U3 - 10.2196/60860
VL - 13
VO - 1929-0748
Y1 - 2024
ER -