TY - JOUR
AU - M. P. Pomey
AU - B. Schaad
AU - A. Lasserre-Moutet
AU - P. Böhme
AU - M. Jackson
A1 - 
AB - INTRODUCTION: The Chronic Care Model (CCM), the Expanded Chronic Care Model (ECCM) and the eHealth Enhanced Chronic Care Model (eCCM) focus on how healthcare teams and eHealth support can offer effective care and relevant solutions for patients facing chronic care conditions. However, they do not consider how patients can help these teams in their work, nor do they promote ways in which patients can help themselves. However, in the last decade, three different models have emerged that can complete our capacity to design and deliver integrated care for people with chronic diseases. In this article, we propose a revised version of the model that integrates the patient perspective and patients' experience-based knowledge. It integrates three different ways of engaging patients that complement the other patient engagement point of view: the experience of care and mediation in healthcare, therapeutic patient education and patient learning pathways, as well as patient-professional partnership. METHODOLOGY: For each of the three models, we conducted a review of the literature using CINAHL, Medline, OVID, EMBASE PsychINFO, Science Direct and government reports on patient engagement and partnership with their healthcare providers, to integrate the different components of these models into the ECCM and eCCM. The goal is to create a model that better takes into account the experiential knowledge of patients and citizens throughout its different dimensions. RESULTS: We identified 129 papers based on their framework, design, sample, measures and fit with patient engagement and chronic illness and added our own research when relevant. Integrating the three models provides an opportunity to amplify the role played by the patient perspective in the management of chronic disease. The Expanded Chronic Care Patient-Professional Partnership Model (E2C3PM) is intended to rebalance power relations between healthcare professionals and patients (and their caregivers). This new model is based on recognizing patients' experiential knowledge and their roles as caregivers and as full members of the care team. Integrating patient empowerment into the E2C3PM underscores the importance of coproduction care with patients at the clinical, organizational and system levels within a supportive environment. CONCLUSION: Applying this new model should make it possible to better take into account the complexity of chronic diseases, improving the integration not only of care, services and eHealth support but also the various determinants of health and reaching a mutually beneficial settlement among all actors involved. PATIENT OR PUBLIC CONTRIBUTION: A patient-researcher contributed to the development of the protocol, the data collection and the preparation and writing of this manuscript.
AD - Research Centre of the University of Montreal Hospital Centre, Montréal, Québec, Canada.; Centre d'excellence sur le partenariat avec les patients et le public, Montréal, Québec, Canada.; Department of Health Policy, Management and Evaluation, School of Public Health, University of Montréal, Québec, Canada.; Department of Family Medicine and Emergency Medicine, University of Montréal, Montréal, Québec, Canada.; Institut des Humanités en Médecine du Centre Hospitalier Universitaire Vaudois (CHUV), Lausanne, Switzerland.; Centre sur le vécu des patient.es et des professionnel.les, Direction générale du Centre Hospitalier Universitaire Vaudois (CHUV)/Faculté de Biologie et de Médecine de l'Université de Lausanne (UNIL), Lausanne, Switzerland.; Centre d'éducation thérapeutique du patient, Hôpitaux Universitaires de Genève, Genève, Switzerland.; Department of Endocrinology, Diabetology and Nutrition, CHRU Nancy, Nancy, France.; University of Lorraine, Inserm, NGERE, Nancy, France.
AN - 39373129
BT - Health Expect
C5 - Healthcare Disparities; Education & Workforce
CP - 5
DA - Oct
DO - 10.1111/hex.70054
DP - NLM
IS - 5
JF - Health Expect
LA - eng
N2 - INTRODUCTION: The Chronic Care Model (CCM), the Expanded Chronic Care Model (ECCM) and the eHealth Enhanced Chronic Care Model (eCCM) focus on how healthcare teams and eHealth support can offer effective care and relevant solutions for patients facing chronic care conditions. However, they do not consider how patients can help these teams in their work, nor do they promote ways in which patients can help themselves. However, in the last decade, three different models have emerged that can complete our capacity to design and deliver integrated care for people with chronic diseases. In this article, we propose a revised version of the model that integrates the patient perspective and patients' experience-based knowledge. It integrates three different ways of engaging patients that complement the other patient engagement point of view: the experience of care and mediation in healthcare, therapeutic patient education and patient learning pathways, as well as patient-professional partnership. METHODOLOGY: For each of the three models, we conducted a review of the literature using CINAHL, Medline, OVID, EMBASE PsychINFO, Science Direct and government reports on patient engagement and partnership with their healthcare providers, to integrate the different components of these models into the ECCM and eCCM. The goal is to create a model that better takes into account the experiential knowledge of patients and citizens throughout its different dimensions. RESULTS: We identified 129 papers based on their framework, design, sample, measures and fit with patient engagement and chronic illness and added our own research when relevant. Integrating the three models provides an opportunity to amplify the role played by the patient perspective in the management of chronic disease. The Expanded Chronic Care Patient-Professional Partnership Model (E2C3PM) is intended to rebalance power relations between healthcare professionals and patients (and their caregivers). This new model is based on recognizing patients' experiential knowledge and their roles as caregivers and as full members of the care team. Integrating patient empowerment into the E2C3PM underscores the importance of coproduction care with patients at the clinical, organizational and system levels within a supportive environment. CONCLUSION: Applying this new model should make it possible to better take into account the complexity of chronic diseases, improving the integration not only of care, services and eHealth support but also the various determinants of health and reaching a mutually beneficial settlement among all actors involved. PATIENT OR PUBLIC CONTRIBUTION: A patient-researcher contributed to the development of the protocol, the data collection and the preparation and writing of this manuscript.
PY - 2024
SN - 1369-6513 (Print); 1369-6513
SP - e70054
ST - Towards a New Integrated Model for Taking Into Account the Experiential Knowledge of People With Chronic Diseases, Integrating Mediation, Therapeutic Education and Partnership: The Expanded Chronic Care Patient-Professional Partnership Model
T1 - Towards a New Integrated Model for Taking Into Account the Experiential Knowledge of People With Chronic Diseases, Integrating Mediation, Therapeutic Education and Partnership: The Expanded Chronic Care Patient-Professional Partnership Model
T2 - Health Expect
TI - Towards a New Integrated Model for Taking Into Account the Experiential Knowledge of People With Chronic Diseases, Integrating Mediation, Therapeutic Education and Partnership: The Expanded Chronic Care Patient-Professional Partnership Model
U1 - Healthcare Disparities; Education & Workforce
U3 - 10.1111/hex.70054
VL - 27
VO - 1369-6513 (Print); 1369-6513
Y1 - 2024
ER -