TY - JOUR
AU - T. J. Newton
AU - N. Shah
AU - K. Lewis
AU - M. S. Zocchi
AU - F. R. Bixler
AU - B. Etingen
AU - J. M. Lipschitz
AU - S. A. Robinson
AU - T. P. Hogan
AU - S. L. Shimada
A1 - 
AB - Patient-generated health data (PGHD) encompass health-related information created, recorded, and gathered by patients in their daily lives, and are distinct from data collected in clinical settings. PGHD can offer insight into patients' everyday health behaviors and conditions, supporting health management and clinical decision-making. The Veterans Health Administration (VHA) has developed a robust infrastructure to collect PGHD, including automatically collected data from digital sensors and patient-entered data. This effort is guided by comprehensive policy and strategy documents to ensure the secure storage and effective use of PGHD. This paper describes the development and implementation of an infrastructure to support PGHD within the VHA and highlights envisioned clinical and research uses of PGHD to advance health care for US veterans. The PGHD database was built to Fast Healthcare Interoperability Resources standards, facilitating secure data storage and exchange of PGHD. Clinical tools, such as the provider-facing dashboards, make PGHD accessible from the electronic health records. Research and evaluation efforts focus on evaluating PGHD's impact on patient engagement, clinical outcomes, and health care equity. The VHA's comprehensive PGHD infrastructure represents a significant advancement in personalized health care and patient engagement. The integration of PGHD into clinical practice can enhance shared decision-making and self-management, while research and evaluation efforts can address how to maximize the benefits of PGHD for veterans. The VHA's approach sets a benchmark for other US health care systems in leveraging PGHD to achieve the broad aims of enhancing stakeholder health care experiences, improving population health and health equity, and reducing costs.
AD - Office of Connected Care, Veterans Health Administration, Washington, DC, United States.; eHealth Partnered Evaluation Initiative, Veterans Affairs Bedford Healthcare System, Bedford, MA, United States.; Center for Health Optimization and Implementation Research (CHOIR), Veterans Affairs Bedford Healthcare System, 200 Springs Road, Bldg. 70, Bedford, MA, 01730, United States, 1 781-687-4737.; Division of Health Informatics and Implementation Science, Department of Population and Quantitative Health Sciences, University of Massachusetts Medical School, Worcester, MA, United States.; Center of Innovation for Complex Chronic Healthcare (CINCCH), Edward Hines Jr. Veterans Affairs Hospital, Hines, IL, United States.; Research and Development Service, Dallas Veterans Affairs Medical Center, Dallas, TX, United States.; Peter O'Donnell Jr School of Public Health, University of Texas Southwestern Medical Center, Dallas, TX, United States.; Department of Psychiatry, Brigham and Women's Hospital, Boston, MA, United States.; Department of Psychiatry, Harvard Medical School, Boston, MA, United States.; The Pulmonary Center, Boston University School of Medicine, Boston, MA, United States.; Department of Health Law, Policy, and Management, Boston University School of Public Health, Boston, MA, United States.
AN - 40479588
BT - J Med Internet Res
C5 - Healthcare Disparities; HIT & Telehealth
DA - Jun 6
DO - 10.2196/70755
DP - NLM
ET - 20250606
JF - J Med Internet Res
LA - eng
N2 - Patient-generated health data (PGHD) encompass health-related information created, recorded, and gathered by patients in their daily lives, and are distinct from data collected in clinical settings. PGHD can offer insight into patients' everyday health behaviors and conditions, supporting health management and clinical decision-making. The Veterans Health Administration (VHA) has developed a robust infrastructure to collect PGHD, including automatically collected data from digital sensors and patient-entered data. This effort is guided by comprehensive policy and strategy documents to ensure the secure storage and effective use of PGHD. This paper describes the development and implementation of an infrastructure to support PGHD within the VHA and highlights envisioned clinical and research uses of PGHD to advance health care for US veterans. The PGHD database was built to Fast Healthcare Interoperability Resources standards, facilitating secure data storage and exchange of PGHD. Clinical tools, such as the provider-facing dashboards, make PGHD accessible from the electronic health records. Research and evaluation efforts focus on evaluating PGHD's impact on patient engagement, clinical outcomes, and health care equity. The VHA's comprehensive PGHD infrastructure represents a significant advancement in personalized health care and patient engagement. The integration of PGHD into clinical practice can enhance shared decision-making and self-management, while research and evaluation efforts can address how to maximize the benefits of PGHD for veterans. The VHA's approach sets a benchmark for other US health care systems in leveraging PGHD to achieve the broad aims of enhancing stakeholder health care experiences, improving population health and health equity, and reducing costs.
PY - 2025
SN - 1439-4456 (Print); 1438-8871
SP - e70755
ST - Developing Infrastructure to Realize the Value of Patient-Generated Health Data in a Large Integrated Health Care System: The Veterans Health Administration Experience
T1 - Developing Infrastructure to Realize the Value of Patient-Generated Health Data in a Large Integrated Health Care System: The Veterans Health Administration Experience
T2 - J Med Internet Res
TI - Developing Infrastructure to Realize the Value of Patient-Generated Health Data in a Large Integrated Health Care System: The Veterans Health Administration Experience
U1 - Healthcare Disparities; HIT & Telehealth
U3 - 10.2196/70755
VL - 27
VO - 1439-4456 (Print); 1438-8871
Y1 - 2025
ER -