TY - JOUR
KW - Cystic fibrosis
KW - integrated behavioral health
KW - Intellectual and developmental disabilities
KW - multidisciplinary care
KW - Pediatric-onset conditions
KW - Sickle cell disease
AU - K. E. Holderle
AU - E. Poleshuck
AU - T. Rosenberg
AU - T. Pulcino
A1 - 
AB - Increased life expectancy for individuals with complex pediatric-onset conditions means most of this population survive into adulthood. While this is great news for individuals and their families, the traditional adult medical model must adapt to extend the care provided by specialty pediatric practices to primary care. In this paper, we introduce a model of integrated behavioral health (IBH) in a primary care practice for adults with childhood onset medical and developmental conditions. Our discussion includes the role of IBH providers (i.e., psychologists, psychiatrists, and social workers) as members of the integrated team, patient engagement and response to treatment, and innovative ways we strive to meet patient needs. Our review of electronic health records of patients seen at the UR Medicine Complex Care Center suggest that IBH is feasible and highly utilized, with 216 patients (40%) having had contact with an IBH provider on the team at least once. We discuss the challenges of meeting the longer-term needs of this complex patient population and our directions for future growth including creating peer and caregiver support networks, expanding services offered, and continued collaboration with community partners.
AD - Department of Psychiatry and Pediatrics, University of Rochester Medical Center, 905 Culver Road, Rochester, NY, 14609, USA. Kristen_Holderle@urmc.rochester.edu.; Department of Psychiatry and Obstetrics/Gynecology, University of Rochester Medical Center, Rochester, NY, USA.; Department of Psychiatry and Family Medicine, University of Rochester Medical Center, Rochester, NY, USA.; Department of Internal Medicine and Pediatrics, University of Rochester Medical Center, Rochester, NY, USA.
BT - Journal of clinical psychology in medical settings
C5 - Education & Workforce; Healthcare Disparities
DO - 10.1007/s10880-021-09798-w
JF - Journal of clinical psychology in medical settings
LA - eng
M1 - Journal Article
N2 - Increased life expectancy for individuals with complex pediatric-onset conditions means most of this population survive into adulthood. While this is great news for individuals and their families, the traditional adult medical model must adapt to extend the care provided by specialty pediatric practices to primary care. In this paper, we introduce a model of integrated behavioral health (IBH) in a primary care practice for adults with childhood onset medical and developmental conditions. Our discussion includes the role of IBH providers (i.e., psychologists, psychiatrists, and social workers) as members of the integrated team, patient engagement and response to treatment, and innovative ways we strive to meet patient needs. Our review of electronic health records of patients seen at the UR Medicine Complex Care Center suggest that IBH is feasible and highly utilized, with 216 patients (40%) having had contact with an IBH provider on the team at least once. We discuss the challenges of meeting the longer-term needs of this complex patient population and our directions for future growth including creating peer and caregiver support networks, expanding services offered, and continued collaboration with community partners.
PY - 2021
SN - 1573-3572; 1068-9583; 1068-9583
SP - 1
EP - 10
EP - 
T1 - Integrated Behavioral Health in Primary Care for Adults with Complex Childhood Onset Medical and Developmental Diagnoses
T2 - Journal of clinical psychology in medical settings
TI - Integrated Behavioral Health in Primary Care for Adults with Complex Childhood Onset Medical and Developmental Diagnoses
U1 - Education & Workforce; Healthcare Disparities
U2 - 34189638
U3 - 10.1007/s10880-021-09798-w
VO - 1573-3572; 1068-9583; 1068-9583
Y1 - 2021
Y2 - Jun 29
ER -