TY - JOUR KW - Humans KW - Opioid-Related Disorders/psychology KW - Psychometrics/methods KW - Quality of Life/psychology KW - Reproducibility of Results KW - Content Analysis KW - instrument KW - Opioid KW - Quality of Life KW - Review KW - Substance use disorder AU - L. Strada AU - W. Vanderplasschen AU - A. Buchholz AU - B. Schulte AU - A. E. Muller AU - U. Verthein AU - J. Reimer A1 - AB - PURPOSE: Opioid dependence is a chronic relapsing disorder. Despite increasing research on quality of life (QOL) in people with opioid dependence, little attention has been paid to the instruments used. This systematic review examines the suitability of QOL instruments for use in opioid-dependent populations and the instruments' quality. METHODS: A systematic search was performed in the databases Medline, PsycInfo, The Cochrane Library, and CINAHL. Articles were eligible if they assessed QOL of opioid-dependent populations using a validated QOL instrument. Item content relevance to opioid-dependent people was evaluated by means of content analysis, and instrument properties were assessed using minimum standards for patient-reported outcome measures. RESULTS: Eighty-nine articles were retrieved, yielding sixteen QOL instruments, of which ten were assessed in this review. Of the ten instruments, six were disease specific, but none for opioid dependence. Two instruments had good item content relevance. The conceptual and measurement model were described in seven instruments. Four instruments were developed with input from the respective target population. Eight instruments had low respondent and administrator burden. Psychometric properties were either not assessed in opioid-dependent populations or were inconclusive or moderate. CONCLUSIONS: No instrument scored perfectly on both the content and properties. The limited suitability of instruments for opioid-dependent people hinders accurate and sensitive measurement of QOL in this population. Future research is in need of an opioid dependence-specific QOL instrument to measure the true impact of the disease on people's lives and to evaluate treatment-related services. AD - Centre for Interdisciplinary Addiction Research, University Medical Centre Hamburg-Eppendorf, Martinistrasse 52, 20246, Hamburg, Germany. L.strada@uke.de.; Department of Special Needs Education, Ghent University, Henri Dunantlaan 2, 9000, Ghent, Belgium.; Department of Medical Psychology, University Medical Centre Hamburg-Eppendorf, Martinistrasse 52, 20246, Hamburg, Germany.; Centre for Interdisciplinary Addiction Research, University Medical Centre Hamburg-Eppendorf, Martinistrasse 52, 20246, Hamburg, Germany.; Norwegian Centre for Addiction Research, Institute of Clinical Medicine, University of Oslo, Pb 1039 Blindern, 0450, Oslo, Norway.; Centre for Interdisciplinary Addiction Research, University Medical Centre Hamburg-Eppendorf, Martinistrasse 52, 20246, Hamburg, Germany.; Centre for Interdisciplinary Addiction Research, University Medical Centre Hamburg-Eppendorf, Martinistrasse 52, 20246, Hamburg, Germany.; Gesundheit Nord, Kurfurstenallee 130, 28211, Bremen, Germany. BT - Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation C5 - Measures; Opioids & Substance Use CP - 12 CY - Netherlands DO - 10.1007/s11136-017-1674-6 IS - 12 JF - Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation M1 - Journal Article N2 - PURPOSE: Opioid dependence is a chronic relapsing disorder. Despite increasing research on quality of life (QOL) in people with opioid dependence, little attention has been paid to the instruments used. This systematic review examines the suitability of QOL instruments for use in opioid-dependent populations and the instruments' quality. METHODS: A systematic search was performed in the databases Medline, PsycInfo, The Cochrane Library, and CINAHL. Articles were eligible if they assessed QOL of opioid-dependent populations using a validated QOL instrument. Item content relevance to opioid-dependent people was evaluated by means of content analysis, and instrument properties were assessed using minimum standards for patient-reported outcome measures. RESULTS: Eighty-nine articles were retrieved, yielding sixteen QOL instruments, of which ten were assessed in this review. Of the ten instruments, six were disease specific, but none for opioid dependence. Two instruments had good item content relevance. The conceptual and measurement model were described in seven instruments. Four instruments were developed with input from the respective target population. Eight instruments had low respondent and administrator burden. Psychometric properties were either not assessed in opioid-dependent populations or were inconclusive or moderate. CONCLUSIONS: No instrument scored perfectly on both the content and properties. The limited suitability of instruments for opioid-dependent people hinders accurate and sensitive measurement of QOL in this population. Future research is in need of an opioid dependence-specific QOL instrument to measure the true impact of the disease on people's lives and to evaluate treatment-related services. PP - Netherlands PY - 2017 SN - 1573-2649; 0962-9343 SP - 3187 EP - 3200 EP - T1 - Measuring quality of life in opioid-dependent people: a systematic review of assessment instruments T2 - Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation TI - Measuring quality of life in opioid-dependent people: a systematic review of assessment instruments U1 - Measures; Opioids & Substance Use U2 - 28762100 U3 - 10.1007/s11136-017-1674-6 VL - 26 VO - 1573-2649; 0962-9343 Y1 - 2017 Y2 - Dec ER -