TY - JOUR KW - Adaptation, Psychological KW - Adult KW - Attitude of Health Personnel KW - Attitude to Health KW - Consensus KW - Female KW - Humans KW - Life Change Events KW - Male KW - Middle Aged KW - Narration KW - Outcome Assessment (Health Care) KW - Physician-Patient Relations KW - Physicians, Family/psychology KW - Primary Health Care/standards/utilization KW - Psychiatric Status Rating Scales/statistics & numerical data KW - Qualitative Research KW - Questionnaires KW - Referral and Consultation KW - Somatoform Disorders/psychology/therapy KW - Tape Recording AU - F. C. Dwamena AU - J. S. Lyles AU - R. M. Frankel AU - R. C. Smith A1 - AB - BACKGROUND: High utilising primary care patients with medically unexplained symptoms (MUS) often frustrate their primary care providers. Studies that elucidate the attitudes of these patients may help to increase understanding and improve confidence of clinicians who care for them. The objective of this study was to describe and analyze perceptions and lived experiences of high utilising primary care patients with MUS. METHODS: A purposive sample of 19 high utilising primary care patients for whom at least 50% (69.6% in this sample) of visits for two years could not be explained medically, were encouraged to talk spontaneously about themselves and answer semi-structured questions. Verbatim transcripts of interviews were analyzed using an iterative consensus building process. RESULTS: Patients with MUS almost universally described current and/or past family dysfunction and were subjected to excessive testing and ineffective empirical treatments. Three distinct groups emerged from the data. 1) Some patients, who had achieved a significant degree of psychological insight and had success in life, primarily sought explanations for their symptoms. 2) Patients who had less psychological insight were more disabled by their symptoms and felt strongly entitled to be excused from normal social obligations. Typically, these patients primarily sought symptom relief, legitimization, and support. 3) Patients who expressed worry about missed diagnoses demanded excessive care and complained when their demands were resisted. CONCLUSION: High utilising primary care patients are a heterogeneous group with similar experiences and different perceptions, behaviours and needs. Recognizing these differences may be critical to effective treatment and reduction in utilisation. BT - BMC family practice C5 - Medically Unexplained Symptoms CY - England DO - 10.1186/1471-2296-10-67 JF - BMC family practice N2 - BACKGROUND: High utilising primary care patients with medically unexplained symptoms (MUS) often frustrate their primary care providers. Studies that elucidate the attitudes of these patients may help to increase understanding and improve confidence of clinicians who care for them. The objective of this study was to describe and analyze perceptions and lived experiences of high utilising primary care patients with MUS. METHODS: A purposive sample of 19 high utilising primary care patients for whom at least 50% (69.6% in this sample) of visits for two years could not be explained medically, were encouraged to talk spontaneously about themselves and answer semi-structured questions. Verbatim transcripts of interviews were analyzed using an iterative consensus building process. RESULTS: Patients with MUS almost universally described current and/or past family dysfunction and were subjected to excessive testing and ineffective empirical treatments. Three distinct groups emerged from the data. 1) Some patients, who had achieved a significant degree of psychological insight and had success in life, primarily sought explanations for their symptoms. 2) Patients who had less psychological insight were more disabled by their symptoms and felt strongly entitled to be excused from normal social obligations. Typically, these patients primarily sought symptom relief, legitimization, and support. 3) Patients who expressed worry about missed diagnoses demanded excessive care and complained when their demands were resisted. CONCLUSION: High utilising primary care patients are a heterogeneous group with similar experiences and different perceptions, behaviours and needs. Recognizing these differences may be critical to effective treatment and reduction in utilisation. PP - England PY - 2009 SN - 1471-2296; 1471-2296 SP - 67 T1 - In their own words: qualitative study of high-utilising primary care patients with medically unexplained symptoms T2 - BMC family practice TI - In their own words: qualitative study of high-utilising primary care patients with medically unexplained symptoms U1 - Medically Unexplained Symptoms U2 - 19772582 U3 - 10.1186/1471-2296-10-67 VL - 10 VO - 1471-2296; 1471-2296 Y1 - 2009 ER -